Palliative Care

5 Surprising Facts About Palliative Care

There’s an important medical term that you may not have heard of: Palliative Care. “Palliate” means to make comfortable by treating a person’s symptoms resulting from a serious illness. Hospice is one form of this care that many Americans have heard of. Palliative Care is much more comprehensive than many people realize.

1. It’s More Than Just Pain Relief

Palliative care focuses on helping a person be comfortable by addressing all symptoms that cause physical distress: pain, digestive issues, swelling, difficulty breathing, etc. Palliative care professionals are experts at managing all symptoms associated with serious illness. Additionally, this care addresses the spiritual and emotional needs of patients.

2. It’s Delivered By A Team

Hospice and other palliative care providers utilize teams consisting of doctors, nurses, nurses aides, social workers, counselors, chaplains, and trained volunteers, working together to provide, physical, emotional, social and spiritual care.

3. Palliative Care Includes The Patient’s Family

The goals of care are to improve the quality of a seriously ill person’s life and to support that person and their family (or support network) during and after treatment.

4. It’s Not Limited To Hospice

For more than thirty years, hospice programs have been providing palliative care for people at the end of life. Hospice serves more than 1.65 million patients and their family caregivers each year. Hospices are the largest providers of palliative care services in the county. However, this very same approach to care is being used by other healthcare providers, including teams in hospitals, nursing facilities and home health agencies in combination with other medical treatments to help people who are seriously ill.

5. It’s Available At Any Time During Illness

If it can help make life more enjoyable, why wait? Palliative care may be given at any time during a person’s illness, from diagnosis on. Under hospice palliative care, a patient focuses on comfort and quality of life. Under palliative care outside of hospice, a patient may continue with curative treatments.

Houston Hospice can help you understand more about palliative care and all the services offered by Houston Hospice. Contact our 24/7 help and information number at 713-468-2441.

Additional information on caregiving and advance care planning is available from the National Hospice and Palliative Care Organization’s Caring Connections at www.CaringInfo.org.

—Karla Goolsby, Houston Hospice Communications Specialist

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A Human Rights Treaty Finally Recognizes the Right to Palliative Care

First Instrument Of Its Kind To Explicitly Refer To Palliative Care

The resolution that older persons should enjoy all existing human rights and fundamental freedoms on an equal basis, couldn’t be timelier. ElderlyHumanRightsFor years, international conventions have protected the rights of children, women, and people with disabilities—groups recognized as vulnerable to marginalization and human rights violations. Yet the rights of older persons, who are susceptible to the same violations, have been woefully neglected in the human rights framework. Finally, there’s a sign that this is beginning to change.

In late June, the Organization of American States released a resolution in which member countries adopted the Inter-American Convention on the Human Rights of Older Persons. It was immediately signed by Argentina, Brazil, Chile, Costa Rica, and Uruguay, and completed in record time, with drafting efforts initiated in 2012 and final text approved in 2015.

The convention recognizes that older persons should enjoy all existing human rights and fundamental freedoms on an equal basis, and is based on general principles including dignity, independence, proactivity, autonomy, and full and productive integration into society.

The resolution couldn’t be timelier. Advances in science, technology, and medicine have helped make the older population one of the most rapidly growing age groups in the world. Yet older persons are often denied access to health, social benefits, work, food, and housing. They bear a disproportionately large burden of chronic, life-limiting, and incurable illnesses, and they often experience severe, debilitating pain.

This is the first instrument of its kind to explicitly refer to palliative care. It requires countries to provide access to palliative care without discrimination, to prevent unnecessary suffering and futile procedures, and to appropriately manage problems related to the fear of death. It also mandates that countries establish procedures to enable older persons to indicate in advance their will and instructions with regard to health care interventions.

The Convention Defines Palliative Care As:71359394

the active, comprehensive, and interdisciplinary care and treatment of patients whose illness is not responding to curative treatment or who are suffering avoidable pain, in order to improve their quality of life until the last day of their lives. Central to palliative care is control of pain, of other symptoms, and of the social, psychological, and spiritual problems of the older person. It includes the patient, their environment, and their family. It affirms life and considers death a normal process, neither hastening nor delaying it.

The Resolution Is Not Without Its Flaws

30334509The resolution is not without its flaws, however. For instance, it does not address important legal aspects of palliative care, such as concerns related to inheritance laws and the future of the patient’s property, access to social benefits, patient confidentiality, and the care of children and grandchildren. These legal concerns are closely tied to emotional distress during end-of-life care, and addressing them is part of palliative care’s holistic approach.

The Inter-American Convention established a follow-up mechanism to monitor progress in implementing its provisions. Countries must submit periodic reports to a committee of experts, and people or NGOs may submit petitions concerning any violation of the convention’s provisions.

The convention will enter into force as soon as two signatory countries ratify it, which is expected to happen soon. Once it does, human rights advocates in Latin America will finally be able to rely on a legally binding instrument to demand accountability for the failure to respect older persons’ rights.

There’s More Work To Do

30359571But the effects of the convention could reverberate even further, helping to interpret the human rights of older people elsewhere in the world. For example, it comes at a critical moment to influence the African Regional Human Rights System, which is currently in the process of considering a draft Protocol on the Rights of Older Persons in Africa. And it strengthens civil society’s long-standing call for a UN convention on older persons, which was repeatedly raised during this year’s sixth session of the UN Open-Ended Working Group on Ageing.

We hope that the Inter-American Convention can set an important precedent for the drafting of other human rights instruments that include the right to palliative care. From the right to decide about end-of-life care, to relief from unnecessary suffering, to the need for adequately trained health professionals, palliative care is a human right the world must come to recognize.

From: Open Society Foundations

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Watch – Hospice Conversations and Policies are Changing

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HOSPICE SERVICES SUPPORT THE LOVING CARE OF FAMILIES

As our population ages, medical professionals are finding that cultural factors influence the decisions of the patients and their families as their illnesses progress. End of life care involves a time of

Dr. Hanh Trinh

Dr. Hanh Trinh

medical, financial, and emotional changes for patients and their families. Patients can be referred to hospice when they are diagnosed with a terminal condition with a prognosis of 6 months or less. Hospice provides a team-oriented method of addressing not just physical pain, but also spiritual and emotional pain.

The cost of hospice care is covered entirely by Medicare and Medicaid for patients with these benefits. For those patients with private insurance, verifying benefits with the insurance company is important prior to signing on. The hospice team can provide services wherever the patient lives, whether that is in a home, an assisted living facility, or a nursing home. In the case that the patient has uncontrolled symptoms of pain, nausea, shortness of breath, or restlessness, hospice has inpatient facilities which may provide a higher level of care.

Having a hospice team to address their concerns and a 24-hour hospice nurse to call can provide families with the peace of mind that they are not alone, even in their most trying times. The hospice team can follow patients and families on their journey through illness; from the time their active treatments are no longer beneficial, to comforting moments enriched by hospice’s supportive care when patients can be among their loved ones. To learn more about hospice comfort care visit www.houstonhospice.org or call 713-467-7423 (713-HOSPICE).

Thuy Hanh Trinh, MD

Thuy Hanh Trinh, MD, MBA, FAAFP, FAAHPM, WCC, is an Associate Medical Director at Houston Hospice in Houston, Texas. She received her medical degree from Louisiana State University Health Science Center in New Orleans and trained in family medicine at Baylor College of Medicine. Following residency, she completed her geriatric fellowship at Baylor College of Medicine and her palliative medicine fellowship at M.D. Anderson Cancer Center. She joined Houston Hospice in 2007 and serves as the Education Liaison.

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